savoy050

As much as I love writing and blogging I am throwing in the towel.  I haven't been able to keep up with the scheduled postings these last few days of the WEGO Health Challenge and I am going to be quite busy for the next few weeks as well.  You'd think I could pull out just two more days of posts but I honestly just don't have it in me.  I'm sorry. 

I failed to post the last two days because I had to attend a CPR class, a nurse's meeting, orientation and a doctor's appointment.  Too much going on to stop and think about writing.  My apologies. Today is a Top 5 post.  The 5 most difficult parts of my health focus and the 5 small victories that keep me going.  Here goes... Top 5 most difficult parts of having Crohn's 1.  Having to go - NOW!  When I have to go I have to go immediately.  If I cannot get to a bathroom within seconds I will have a mess.  It is the most annoying part of Crohn's for me.  It is also the part of having this disease that causes me the most anxiety.  2.  Doctor visits and test.  I loathe going to the doctor.  I loathe having to wait in waiting rooms full of people I always deem sicker than myself.  I loathe having tests and procedures.  I loathe the preps for the tests and everything they encompass.  3.  Not being able to...

This is my mascot - my bathroom puppy.  Her name is Baylee Binks and she follows me everywhere.  She is my sweet old dog that I swear suffers from Alzheimer's.  I think she forgets her own name and where she is half the time but she always remembers to follow me to the bathroom even if it's 15 times a day. 

Writer's choice today!!  That means more pins of funny pictures from Pinterest!!!

Are you sick of these posts yet?  I kinda am.  But today I am to write about the things we forget.  My daughter forgets to take a shower and flush the toilet. (Genius types - never good with the personal hygiene.  Bigger things on their minds, I suppose.) I forget lots of things.  I forget to take care of myself.  I forget to rest.  I forget to eat things that don't upset my intestines and instead I end up eating things I regret.  I forget to take my medication.  I forget how strong I am.  I forget to encourage myself and not tear myself down.  I forget lots of things.  There is actually a post it note on my front door for me to not forget my lunch when I go to work.  Forgetting is a part of me.  It's something I do all the time.

Today is another poem theme.  Again, as a rule, I never write poetry.  I also do not participate in a Mad-Libs of sorts unless it is with my fellow nursing student friends Brandi and Casandra.  And that is only so Brandi and I can make Casandra pee her pants - literally!  HAHA!!  Passing on today.  Yea, I suck at this.

I found this post hanging out in my "draft" folder.  I have no idea when I wrote it or why I never posted it.  Funny, it still applies... I'm done with Crohn's. I'm done with pain. I'm done with pain that has no cause or physical reason. I am done with scar tissue and surgeries and tests and X-rays. So done that I might have just crossed over into denial. I'm over being sick and feeling horrible. I'm tired of being tired. I have a headache from having headaches and my stomach hurts from stomach pain. I don't want to be the medical mystery of the doctor's office any more. I don't want to feel like some psycho with Münchausen syndrome because everything comes back normal on my tests. So, I am done. It's over. I'm out. It's finished. I'm done. These thoughts are what rolls around in my head all day long. But it's not that easy. I can say I'm done but in all reality I am very far from being done. I have ...

For some reason I am finding myself unable to do today's post.  It is supposed to be a news article announcing the cure for a disease.  It isn't that I don't want to see many diseases cured, or imagine a life without things like Crohn's disease, Ulcerative Colitis, IBS and Fibromyalgia.  It is just there are too many diseases to narrow down.  So many diseases have touched my life that I cannot chose.  And I cannot help but think about those people I have lost to disease and how my life would be different had there been a cure.  Lung cancer took my grandfather when I was 9 years old. Cancer of the vulva that spread to the breast took my grandmother when I was 13 years old. Multiple Sclerosis took my father when I was 15 years old and Polio almost took him when he was 5 years old. Alzheimer's took my other grandmother. Prostate cancer didn't take my other grandfather though he did have it. Brain cancer took my brother-in-law. Meniere's disease has just been d...

5 people I would love to have dinner with. 1.  My Grandma Lock 2.  My biological father 3.  Jesus Christ 4.  My daughter's former foster parents 5.  Judas Iscariot

I took a pass for yesterday's post because it was supposed to be about a lesson we have learned the hard way.  Ha!  Read my entire blog and just pick one.  Today's post is supposed to be taking a random book and opening it to a random page and picking a random sentence and that is where we begin the post.  I can do this, but only in a way. Instead of a book, I am taking a letter I got from my doctor's office (that my friend sent me "randomly") and focusing on a few "random" sentences I read that describes some "random" results they found during my CT scan when I was in the hospital a few weeks ago that Dr. GI just "randomly" forgot to inform me about! "...her CT scan, which showed "multiple ventral wall hernias."  REALLY??  REALLY??!!!!!  It also goes on to say "She also had a small, but very tender epigastric hernia just superior to her incision."  And also, "I suspect her symptoms are probably related t...

Here are a few of the pins I have posted on m Pinterest Blog Board.  I chose them because they are so me and they make me laugh.  :)  Enjoy!!

Today is supposed to be about my writing style.  How I do it.  Here goes: I turn the computer on, sign into my blog and type.  Then hit post.  Mostly every post is about just what I am thinking or rehashing something I went through. Boring I know.

Today we are supposed to write about our dream day.  What we would do and if we have ever experienced that day before.  I honestly don't know what it is.  Clearly since I am usually in pain or in the bathroom or both, I am already living the dream.  Okay, not really.

10 Things I Can't Live Without - in no particular order 1. Toilet Paper 2. My computer with internet access 3. Having a pet 4. My comfy clothes 5. Dental Floss 6. Laughter 7. Propofol 8. My friends and family 9. Music 10. My heating pad

"Today I looked in the mirror and"... thought, holy cow I look like crap!  I'm so tired lately.  I sleep and don't feel rested.  At least the Lomotil worked last night and I didn't have to get up and use the bathroom a gazillion times.  I really need to get my roots colored.  I am just too tired to care.  I hate wearing these glasses and miss the days of just wearing contacts.  My eyes aren't so spectacular anymore.  Just plain old green and boring.  Nothing special about them anymore.  I wish I could lose about 80 pounds.  With all the diarrhea and feeling like crap you'd think I could.  I have lost a good 14 pounds though and that's good.  I'm just so exhausted lately.  It is hard to stave off the depression when all I feel like doing is staying in bed with the covers over my head.  That's the trouble with chronic illness.  It's just a vicious circle.   Pain leads to exhaustion which leads to sle...

My husband wrote this post.  It's his song about me, a little parody of Eddie Murphy's Party All The Time .  Enjoy... Girl I can't understand it why you want to hurt me After all the things I've done for you. I buy you Charmin and wipes and ointment for your butt Still you hang out in the bathroom all night what am I to do? My girl has to potty all the time Potty all the time potty all the time. My girl has to potty all the time potty all the time. She potties all the time - potty all the time She has to potty all the time - potty all the time potty all the time - she has to potty all the time potty all the time. Girl I've seen you at the Walmart just searching out the bathrooms. You ask for TP from every one you see. You never come out at night because you're in the bathroom.  Can't you give me five minutes, I just have to pee! My girl has to potty all the time Potty all the time potty all the time. potty all the time. She potties all the...

Dear Jenni's 16 year old Guts, You are sixteen and have started having occasional problems with your belly.  Pain here and there that goes unrelieved.  Spells of diarrhea that your Mom just calls "the wooshers".  You don't have a name for what's wrong yet because you don't know that it is a real problem right now.  You are active.  You have lots of friends and are doing great in school.  You will graduate soon, but don't be in too much of a rush to grow up.  You don't understand the things happening in your family dynamic now but trust me, things are working out just how they are supposed to.  Before too long you will be diagnosed with Crohn's disease.  It won't be easy but it honestly won't be the worst thing you endure in your life.  Maybe you can bypass some of the ugliness in your life if you just trust your friend sooner.  You know which one.  He was right all along - Jesus does change things. Stay away from the blond...

I am really out of sorts with this whole blog post a day thing.  I never really liked being told what to write about.  That's part of the reason I enjoy blogging - it's my brain, my ideas.  But regardless of all of that I am also totally into reading the Hunger Games books right now.  I'm over half way done with the last book and cannot stop long enough to even write a decent post.  My daughter read the books last year and when the movie came out we all went.  I loved it so much that I decided to go against my own personal beliefs of  'why read a book when a perfectly good movie is out there' and start reading them myself.  Let me just say one word - gripping.  Maybe by tomorrow I will be done and can assume our regularly scheduled blogging.  Besides, I get to see Dr. GI tomorrow for my plan of non-action.  Stay tuned.

Today's challenge is to write a Haiku.  Really?  First off, I don't write poetry - ever.  It's a personal rule.  Secondly, really?  A Haiku about poop?  Come on, even I won't do that!  So instead I will write about my hospital stay last week.  Tuesday I waited and waited for my doctor's office to call me about what my small bowel follow through showed.  Did I mention I was able to do the test in 12 minutes?  It took 12 whole minutes from the time the barium touched my lips to the time it was coming out the other end.  My personal best I think.  Finally, I was able to learn that I have acid reflux.  Hmmm, who knew?  ME!  DUH!!!  And as usual, no active Crohn's showed up.  I talked to the nurse about the pain I was having that wouldn't let up.  She informed me that Dr. GI was still out on vacation and if I was having pain I should go to the ER.  I did.  The ER ran a CT scan which show...

Well I kind of missed today's challenge but I saw this and was totally excited and wanted to share:  Jenni’s Guts No bashfulness here—Jenni’s Guts is exactly as it represents itself: a humorous take on life with Crohn’s, IBS, food intolerances, pain, and lots of the good old “number 2.” Pithy and wildly entertaining, Jenni’s Guts is like a docudrama of a real woman’s experiences with Crohn’s, with the added benefit of being able to interact with the story’s star. Potty humor and self-deprecation aside, Jenni’s award-winning journal on life with chronic pain and a host of health problems will stir any reader to laughter and tears—perhaps even in the same post. Healthline editors recently published the final list of their favorite Crohn's IBD blogs and Jenni's Guts made the list. You can find the complete list at http://www.healthline.com/health-slideshow/best-crohns-blogs .  THANK YOU!!! This will work for today's post! 

Why do I blog about my health?  That's a great question because as the Queen of TMI you all know I blog about things most people just want to not even think about.  I blog about poop, pain, stupid doctors and everything that goes along with possibly one of the grossest disease out there.  So why do I do it?  It is definitely not because I think people want to hear about my poop.  I don't even really think I can make a difference in the long run.  Not really.  I'm not raising money and I don't think I am reaching enough people to make an impact on awareness for Crohn's disease.  But nevertheless I blog. I blog so people who have bowel disorders know they aren't alone.  I blog for theraputic reasons.  I blog to help people, including myself, laugh.  I blog because it's the only way I can express myself about how crazy my life is because of all the nonsense going on inside me. 

What's my superpower?  Easy!  I can find a bathroom anywhere.  I can get to a bathroom at the speed of light.  I am able to leap small animals in a single bound.  I can push down old ladies and small children to get where I need to go.  I'm pretty powerful that way!

Today's challenge is: Who said it best? Today, focus on something you’ve heard, read, or even said as the basis for your post. The best thing that comes to mind for this post is a favorite quote of mine from the Bible.  Charm is deceptive and beauty is fleeting, but a woman who fears the Lord should be praised. ~ Proverbs 31:30  There really isn't a big health activist, Crohn's disease, or even Fibromyalgia feel to this really, but it does mean something to me.  This speaks to me because Crohn's stole my body, my outer beauty.  The older I get the more scars I obtain.  My body is stretched and pulled and scared and falling apart literally from the inside out.  It is harder and harder to hide now and things don't 'bounce back' quite like they once did.  But all of these scars, these battle wounds, show what a fighter I am.  They tell a story of what I have been through and most importantly what I have overcome. And though...

I am doing the Wego Health Activist Writers Challenge to write a post a day for every day in April.  Today I am supposed to write something about what I would put in a time capsule to be opened in 100 years or something.  Since I never actually was good at following rules I am totally going to do my own kind of post.  But not because I'm being rude - I was on the road today.... for 7 hours!  I missed the actual email describing what specifically to write about other than briefly reading something of a time capsule entry.  So here goes... To Whom It Concerns in the Year 2112:     If Crohn's disease is still around that must still totally suck!  I can't imagine how far toilet paper has come in the last 100 years considering they just keep making it smaller and smaller now.  There probably isn't much left for you.  Sorry.  As for pain control - yea, that's gotta suck too.  Doctor's probably still aren't listening to pat...