savoy050

Today I'm in shock.  I'm utterly surprised.  I saw Dr. GI yesterday and talked with him for about 45 minutes.  He said a few things to me about my medical history that just floored me.  He said that what has been going on in my belly is NOT gastritis.  He said that several of my previous colonoscopies have shown actual active Crohn's disease.  He said that the bloodwork doesn't always show the inflammation going on with active disease.  He said CT scans are not good to look at intestines - solid organs like livers and kidneys yes, but bowels not so much.  He said my CT scans could be showing active disease that is being dismissed as "insignificant".  He said my symptoms are very spot on for a classic Crohn's flare up.  And then he said he was going to treat me for a flare up.  With real Crohn's medicine and not something to just appease the situation.  FINALLY! Real meds to help! I started my Entocort this morning and will hope...

With this new year starting I am feeling like I always feel every year, hopeful.  Every year that hope slowly fades though, as most things never change when it comes to my illnesses.  This year it has happened so quickly though.  I'm feeling no hope already. To recap what I am struggling with :  I have a history of Crohn's disease, however it has decided to not show itself on any of the tests I have. No raised inflammation levels, no thickening or blockages in the intestines.  Nothing.  Which technically is good, however I still have all the symptoms.  Pain, nausea, mass quantities of diarrhea.  Problems with no cause, no cure, not relief.  I also have Fibromyalgia which completely overruns my life.  I'm sore all over, totally exhausted and I get winded just walking to the bathroom sometimes.  Unfortunately there isn't much they can do about the Fibro.  Just live with it.  Cue the depression.  I am still very, severel...