savoy050

I have finally received some GREAT news!  I received the letter in the mail and my Social Security Disability claim was finally given a FULLY FAVORABLE decision.  In just a few more months I should start receiving the help my family and I have waited so long for.  I had my hearing back in October.  It was the most nerve wracking day of my life, I think.  I fully intended on walking into the hearing, sitting down like a BOSS, and being all like... This is what I actually looked like... But now, I'm just totally and utterly relieved.  The waiting, the struggling, the worry and regret, it's almost over.  I'm truly thankful.

I need to say some things so others know and also so I can remind myself.  Sometimes I get so lost in what others think and their misconceptions and preconceived notions that I forget the truth of what life with multiple chronic illnesses is really all about. Let me enlighten you as to what it is like for me lately.  This morning, around 4:30 am, I was awoken from a very good sleep - which doesn't regularly happen a lot because of insomnia, and I didn't actually get to sleep until well after midnight - by the urge to move my bowels.  Cramps, diarrhea, painful wiping and the anxiety of how much longer I will have until it happens again consumed my sleepy mind.  I managed to get back to bed and laid there, uncomfortably and not sleeping, until around 7:00 am when I had to run to the bathroom again.  Now this time there was much more anxiety.  You see, we only have one bathroom.  My sixteen year old daughter has to get ready for school and is usually in t...

Why does the status and severity of my health problems wax and wane depending upon my financial status?  I see the doctor and I'm somehow in devastating peril that will cause me to need many more visits to the doctor, many, many expensive tests and bottles upon bottles of medications.  However, when it's time for another appointment and I don't have my co-pay and I call and let the office know this, I need to reschedule my appointment, I am all of a sudden cured.  "Oh, well Doctor doesn't have an available appointment until three months from now, would you like that one?" Really?  I thought it was imperative that I saw doctor in six weeks.  I thought doctor wanted to make sure I was doing well and make adjustments to my medications, if necessary, so doctor needed to see me now.  I need a prescription refill of something that doctor said I couldn't just stop, but you won't refill it unless I come in and physically see doctor.  What do I do about my medi...